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This Forum is for patients who suffer from Loin Pain Haematuria Syndrome, their supporters and friends. We also include those who also have IGA and IGM as they are closely connected.
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Title: IgA nephropathy
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--CLAIR--
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(Date Posted:29/01/2006 01:44:40)

Has anyone else heard of someone being diagnosed with IgA nephropathy and LPHS, I thought the IgA was a part of LPHS but my consultant says I have both and they are different conditions as when I had my byopsi it showed scaring in the kidney and the usual signs of LPHSas well as IgA deposits and usual signs of IgA so I am totally confussed now as he seems to think they are seperate, and more common in men, I know Im not very lady like but even I think this is unfair lol. If anyone else can give me some info I would be very gratefull.Thanks

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08264804
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(Date Posted:02/02/2006 21:44:59)

Reply to : --CLAIR--
Has anyone else heard of someone being diagnosed with IgA nephropathy and LPHS, I thought the IgA was a part of LPHS but my consultant says I have both and they are different conditions as when I had my byopsi it showed scaring in the kidney and the usual signs of LPHSas well as IgA deposits and usual signs of IgA so I am totally confussed now as he seems to think they are seperate, and more common in men, I know Im not very lady like but even I think this is unfair lol. If anyone else can give me some info I would be very gratefull.Thanks

Clair,

 

      I was diagnosed as having a variant of IGA nephropathy called C3 nephropathy.  I was also diagnosed with LPHS.  I was told that a few people with IGAN develop LPHS.  They are seperate diseases.     My doctor told me that IGAN can cause pain/hematuria  whenever I have an upper respiratory illness or a stomach virus.   LPHS causes pain 24/7.   The pain is always worse when I am sick.  It's like a double whammy.

Patrick
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John01
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(Date Posted:05/02/2006 13:11:58)

Reply to : 08264804


Reply to : --CLAIR--Has anyone else heard of someone being diagnosed with IgA nephropathy and LPHS, I thought the IgA was a part of LPHS but my consultant says I have both and they are different conditions as when I had my byopsi it showed scaring in the kidney and the usual signs of LPHSas well as IgA deposits and usual signs of IgA so I am totally confussed now as he seems to think they are seperate, and more common in men, I know Im not very lady like but even I think this is unfair lol. If anyone else can give me some info I would be very gratefull.ThanksClair, I was diagnosed as having a variant of IGA nephropathy called C3 nephropathy. I wasalso diagnosed with LPHS. I was told that a few peop


I'm afraid Patrick is right Clair,
IGA whilst being similar to LPHS, is a separate condition and is more problematic and if possible try and get a separate diagnosis.
This is not uncommon as several members also have Lupus, Fibromyalgia and Diabetes as well as LPHS.
Sorry if this is not good news.


John

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koorahk
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(Date Posted:06/02/2006 18:16:53)

Hi Everyone,

I was never actually told that I had IgA but, I was told that I did have  scarring, after my biopsy, and that I would most likely end up with renal failure, but thankfully when I was an old lady, and that most old people pass away due to organ failure etc.

Many of the symptoms etc, of IgA, I do have and I now believe that this was the initial problem. My GP also believes that my LPHS is auto-immune related and I have auto-immne disease in my family.

Hope everyone is coping,

Helen

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Kim Hughes
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(Date Posted:10/03/2006 10:00:43)

Reply to : 08264804
I was diagnosed as having a variant of IGA nephropathy called C3 nephropathy. I wasalso diagnosed with LPHS. I was told that a few peop

 

This is interesting.  I have never heard of C3 nephropathy.  Can you explain what it is.  My biopsy showed heavy deposits of C3.

Thanks, Kim
babyhalo
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RE:IgA nephropathy
(Date Posted:29/04/2008 11:37:31)

My biopsy showed that I had one glomeruli that was totally sclerosed and another that was scarred. The findings of my report suggest IgA positivity and c3 and thin basement membrane. I wish I new what all this meant.
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