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(Date Posted:03/06/2007 23:27:20)
Hi everyoneThis is my current position medically and any information anyone can give will be greatly appreciatedI had a kidney biopsy in 1997 and was diagnosed with Thin Basement Membrane Disease and told very little except that I would lose minute amounts of blood and protein, but that this was of no consequence, just to get my kidney function checked each year by my GP.Over the years, I have had numerous infections and have fainted with pain sometimes due to blood loss/protein loss. My GP actually prescribed dipsticks for me to check on the protein loss as he told me that when I was sick with something else, this would exacerbate my kidneys and the blood loss/protein loss would increase, but so long as it went down, that was fine.Hospitals/GP's seem to know nothing about this disease and are quite alarmed that I even have these dipsticks at my disposal which stops me hassling them at times.Anyway, more recently over the last 6 months or more, I have noticed a pattern which I have referred to my GP. This is guaranteed on between days 7 to 11 of my cycle, I start to feel really nauseous and breathless and have pain over my left kidney. I could sleep for England at this point if I didn't have to get up for work and try to ignore it. I have a week of feeling okay with normal sleepi and a week where I can't sleep for love nor money. My period then starts and the pain returns over my left kidney.My GP has referred me for another scan and blood tests as he is not happy with what's happening, but in the meantime I asked for copies of my hospital notes from varous hospitals over the years. I have just found reference in them at the weekend to loin pain haematuria syndrome which it states I am suffering from in 1999, but which they have never told me despite seeing numerous consultants.Does this sound like the case to any of you? If it is this syndrome that is causing all the nausea and nothing more sinister, then fine, I can live with that, but any advice would be appreciatedRosaliexxx
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Rosalie Dean | 
