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(Date Posted:06/08/2007 01:06:13)
Hello to everyone who has this terrible disease and to their loved ones who stand by their side. My heart goes out to you and my prayers are with you. If you have been recently diagnosed with LPHS and are doing your researc.h, there is a wealth of information on the internet. You can google as much as you desire and you may learn much information about the kidney, nephrons, bowman's capusule and LPHS. However, to save you a lot of time I will provide what I believe is the most important information about LPHS. No one knows what causes the pain. There are a lot of theories, but that is of little value to the person who is suffering with the pain. There only concern should be how do I stop the pain? After speaking to many doctors, there is only currently three viable choices. You can attempt to use opiods and after your body has adjusted, given enough medication you can be pain free but you will sleeping your life away in a chair in your home. Your second choice is to consider RFA. Contact reddevil31 thru this forum, who will help you. And, your third choice is to consider an intrathecial pump. There is much information about the pain pump on the internet.Good Luck to All
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