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This Forum is for patients who suffer from Loin Pain Haematuria Syndrome, their supporters and friends. We also include those who also have IGA and IGM as they are closely connected.
Pleased be advised that the comments contained here may not be accordance with current Medical practice and we do not intend to come between the patient/web browser and their Medical Practitioners only to provide existing patients with a more informed voice and lifestyle when coping with this condition
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Title: treatments
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pussycat56
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Score: 4
Posts: 4
Registered: 30/10/2004
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(Date Posted:16/05/2006 15:24:59)

Hello to you all. I recently had a pyloplasty done on my right ureter just after it leaves the kidney. It has been wonderful! The pain from LPHS of course will never subside but the op has helped with the level of everyday pain. In the 10 months since the op have not had to use any injections from my doc or hospital. the Endone i take manages the pain sucessfully. This is not a cure but it does help. I am now seriously thinking about having ti done on the left side as well. For those not sure of a pyloplasty .....a piece of ureter is removed and then ends are rejoined. Sounds simple but to get to ureter a large incision is needed. The pathology on the piece taken out showed scarring that the pathologist said he had never seen so bad before. my surgeon seems to think the we (LPHS sufferers) for some unknown reason have this scarring which is so bad it blocks urine and bloodclots from leaving the kidney quicker therefore creating more pain as the kidney tries to expel the clots etc. Keep your fingers crossed for me that it lasts a lot longer. Sandra

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