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This Forum is for patients who suffer from Loin Pain Haematuria Syndrome, their supporters and friends. We also include those who also have IGA and IGM as they are closely connected.
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Title: Spinal Cord Stimulator??
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jrjhayes
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Score: 13
Posts: 13
Registered: 05/06/2005
Time spent: 0 hours

(Date Posted:12/03/2006 20:56:47)

has anyone tried a SCS inplant? or heard much about them i have read what the manufactures say about them but was hoping for some real info. even if you havent had one but have a thought on it please let me know. i dont even know if it would help with LPHS but i think i might be willing to try. thanks jeff

ham222
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Score:9
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Registered:10/10/2005
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(Date Posted:20/03/2006 03:20:27)

Reply to : jrjhayes
has anyone tried a SCS inplant? or heard much about them i have read what the manufactures say about them but was hoping for some real info. even if you havent had one but have a thought on it please let me know. i dont even know if it would help with LPHS but i think i might be willing to try.thanksjeff

Hey there,

I actually thought I made a post awhile ago asking the same thing but I can't seem to find it.   My MDs have been talking about it for awhile actually, ever since I found out about my having LPHS they were talking about the SCS implant being an option.  My mother has talked to someone in insurance authorizations that she knows (insurance...always our friend).  This guy said that the SCS implants are hard to get authorized because they tend to stop working, or become less effective after about 6 mos to a year.  After that they have to be replaced and each time they are replaced they become half as effective as they were when they were implanted the last time.  Other than this I don't really know anything about them.  I don't know how effective they are with LPHS.  My MD has pretty much said he doesn't want to go there until he absolutely has to I guess. If you find out anything or get one I would be really interested to know what you find out.  Best of luck.

 

--------------------------------------------------------------
Dance like no one"s watching.
~Holly

jrjhayes
2# 



Rank:none
Score:13
Posts:13
Registered:05/06/2005
Time spent: 0 hours


(Date Posted:21/03/2006 17:42:01)

6 months to a year of pain releif that sound like a dream lol i would love that i will keep you posted on what i decide to do. i have an apt w/ my Pain doc tomarrow. Heres hopeing and wishing you all a day of relief.

Jeff
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