Re
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Help - More Information Required About LPHS
Thanks Alison - apologies for the delay in responding some two years later, but have had ongoing problems with kidneys since resulting in two hospital admissions - one November 2008 and the other 9 days of hell this July 2009. I was under Urology who done a CT scan which they told me revealed lower back damage and have referred me to an orthopaedic clinic for this. I had a cystocopy done on 5th June of my bladder which revealed nothing obvious and am due to see the urologist to discuss this result on 10th August. As far as I am concerned, the diagnosis of Thin Basement which was diagnosed after the biopsy in 1997 is not the only kidney disease I am suffering from - remember they told me it was "of no consequence" and only "trace" amounts of blood and protein would be used. I have just had a very bad time - sudden dizzyness which turned out to be Vertigo - misdiagnosed by two Doctors which one thought was caused by my kidneys. Whilst in hospital, I was under urology, orthopaedics and gynaecology and was suffering vertigo all the time without it being diagnosed until I saw another GP last week who asked a simple question and knew it was vertigo and hopefully that is going away - the CT scan showed a cyst on the ovary I have left which is on the right side and they are reluctant to remove it as I would go into menopause about 20 years too early. I did initially want it removed, but now just want it looked at via keyhole as ironically enough the pain on my kidney is always on the left side and that is the side where the adhesions from previous surgery are. Sorry to ramble on to you all, but the new symptom which I have not experienced before, but which kicked in and terrified me in hospital this last 9 days is that my left leg is numb and I cannot feel it anymore. I also had tremors and stabbing pains in my biceps/triceps and like a shock wave going through my leg/abdomen. The gynaecologist thinks this is due to the kidneys electrical circuits/nerve damage, but that urology really need to get their act together and sort this out once and for all. I told my GP that I think it is Nephrotic Syndrome or Glomelurnephritis and that I want urology to discuss with nephorology and get this sorted as it is not down to Thin Basement or LPHS. Please let me have your thoughts on this last paragraph particularly the shockwave/nerve damage bit and the electrical circuits of the kidney as I just hope it is and all this pain can then be alleviated by diet/exercise/whatever and no more A & E admissions Best wishes to you all and keep fighting the staff who seem to think it's all in our heads Rosalie xxx |
