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(Date Posted:02/01/2006 13:01:31)
Hi Everybody,I was relieved to find this site and wondered whether anyone could give me any guidance or share their experiences with me.I am a 38 year old mother of 2 who started having Kidney pain approx 3 years ago. I had over 10 operations and proceedures for suspected UPJ obstructions, investigations etc and ended up having an auto transplant in 12/04. This was successful up to 2 months ago when the pain returned to the transplant site with avengence. Now I am back on Tramadol, and life is not much fun at all.My consultant has diagnosed LPHS by default I feel. All function tests are normal and an infection I had has now cleared. The pain remains and I often have problems in passing urine.My consultantrecommends that I have the problem kidney removed.I am very worried about this as:1. I am not convinced that i have LPHS as pre Autotransplant I had a Whitaker Test which showed that the Kidney went into Spasm when it was functioning. Also I have never had blood in my urine. In addition which surprised my doctor when I had a Nephrostomy Tube inserted the pain went.2. I have read that there is a 95% chance of the LPHS developing in the other Kidney, is this true? If so then surely this means a 95% chance of ending up on a Transplant list?I have read about other treatments such as Caupacin, RDF Microwves, and Nerve Blocks all of which are dismissed by my Consulant. Has anyone had any of these treatments with any success.I really hope that someone can help me by providing some guidance. At present I am finding life very hard and am very concerned about my future prospects.Thankyou
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