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Rank:none
Score: 13
Posts: 13
Registered:
09/04/2007
Time spent:
0 hours
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(Date Posted:09/04/2007 22:07:30)
Hi Everyone,I am new to the forum, my name is Tracey and I live in Ontario, Canada, a little bit of my story, last Sept/06 I went to my sons hockey game and having a cup of tea on the couch when all of the sudden both sides of my back were getting sore(flank area) by 2:00 am I could barely walk and I felt the need tourinate approx 4-5 times between 8-2, I woke my husband up because I wsa scared as the pain was so intense, I went to the hospital where they kept me for 4 days-morphine&antibiotics by iv-2 cat scans looking for stones came out clear, was released from hospital Dr said he would keep an eye on me but does not know what is a matter with me,weeks went by and the pain became more intense and more frequent, the Dr. decided to do a Colonoscopy and send me to a Neurologist, - he said it ws not nerves,muscle or soft tissue, to be sure he had ordered a Lumbar & Thoraic spine mri, came back fine alng with Colonoscopy, my pain now is getting unbareable, I am having to go to the ER to get pain meds, Dr, puts me on 20 mg of Oxycontin -40/20/40 along with Oxycocet 5&325 for breakthrough pain, now the only thing tht has been showing up is Blood in my urine(microscopic/small&large amounts), they are not sure why,Ultrasound and a Cystoscopy are now introduced-they come back fine, I then take upon myself to go down to Toronto,which is a large city as I live in a small town, to a Private Clininc to be assesed as the pain is unbareable in my back my week long visit I see a Internal Surgeon, Neurologist,Blood work,Ultrasound,X-ray of lungs as I smoke, and the last on my list is a Urologist, all the Dr.s say they do not know what is causing my pain, now the Clininc I went to their motto is "this is the place you come when you can not get diagnossed,THEY WILL FIND IT!!",so we go into the urologist and he looks at my file and asks me to lye on my R side on the bed, he then uses tremendous force and presses down on 2 spots on my ribs, he tells me that my T11&12(in my ribs) are pinched, VOILA i have my answer he prescribes me Diclofenac 100mg, I say to him "that's it, this will take my pain away" he replies yep and ushered me and my husband out of the office, when we get back to our hotel I am dumb founded and I struggle with this diagnosis as I do not feel that this is correct, we return home, I buy the meds I have finished my last pill this am,I do not feel better, I had to go to the hospital last week as the pain was so bad, my girlfriend works in the ER and I told her this story and she could not believe that a Urologist told me this, last week I was looking for answers to the GAbabpentin the Dr. prescibed , I no longer take this med as it never did anything for me and too expensive,(no drug coverage), And I found another forum HW, I posted on there and a woman replied to me and asked if I didn't have LPHS, well I have never heard of this before so IU did more research and the more Iread the moreI thought I wsa reading about myself, I could not believe it,I have had every test out there and nothing, the only thing is blood in urine and excruciating loin pain,I guess I am posting here to get your thoughts, I know no one is a Dr, but I think the best judge is someone that is experiencing this "hell", am I missing something? I am going to print off some info and take it to my Dr this Friday and ask for a Kidney Biopsy to be done as I understand this is the only way to know for sure,is this similar to what any of you have experienced, I just want a diagnosis so bad, I don't want ppl to think I am a drug seeker, I honest to god do not get high from my meds it just numbs the pain and sometimes they don't do that, I have this constant ache, pressure, feels like someone is in there stabbing and turning and no position makes it better,sometimes it is so bad I can not walk, I have nausea not sure if that is from meds or not, I understand from reading caffine is a trigger, does anyone find anything else is?, if anybody reads this please let me know if this is similar to you or haveI missed something, I am thinking that I do have LPHS, there is nothing else that fits, every test comes up negative, but the pain is so real so bad, nothing thatI have ever felt in my life,also if someone could explain exactly what is happening to the kidney,and is there a known cause, I understand there is no cure, does something trigger this or is it just how you were made?, any info, any input ,if you think this is similar to what you have gone through, I beg of you please any information you could give me would be so appreciated! I am so desperate to put a name to this terrible,unbareable pain I have come to know,Thank-youTracey
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