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(Date Posted:24/01/2007 12:28:53)
HiI'm Teri (Teresa) I'm 43 years old (ouch!) and live in South Yorkshire UK.In March last year I began to suffer chronic loin pain and microscopic haematuria. My GP thought I had kidny stones and I was reffered to a Urologist. I had the following tests.Ultrasound : NormalCT scan : showed small area of opaqeness (is that a word???)IVP xray: Normal.After a lenghty discussion with the registrar, who totally ignored my pain and never once examined me, I was reffered, by my GP to the renal unit. Last week, I got the diagnosis of LPHS and advised apart from monitoring of my kidney function and pain management (by my GP) there is nothing they can do.I returned to work part time this week, after 10 months. This was due to my GP trying Amitriptyline in a bid to manage my pain, without stopping me from working. Before this I was taking dihydrocodiene or tramadol. So was either in pain or drowsy! I have to say it works so far. I still have some pain but I can tolerate it. I take the occasional co codomal dose if needed.To add to this I also have some form of inflammatory bowel desease which is not yet diagnosed.I'd love to meet more people with LPHS, and share ideas and offer support.Please excuse typos!!Terixxx
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