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pussycat56
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1#
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Rank:none
Score:4
Posts:4
Registered:30/10/2004
Time spent: 0 hours
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(Date Posted:16/06/2006 14:45:34)
Frank, i have had thiis stimulator placed into my spine but in theory it does sound good but there are a lot of problems with it. The probe things they attach to your spine have a tendancy to move when you do so when stimulated they might affect your leg instead of your kidney area. The lady who sets up the frequency after you have had them placed had a lot of problems matching frquencies so was never able to find out if they worked as in the end they removed them as they were stimulating wrong parts (my left leg would shoot out at any time). Its suppose to be like an internal Tens machine which i have tried but doesnt work on our level of pain. Hope this helps you and your wife. If i had to go through it again i wouldnt. Any more questions just email me.
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Alison Banister
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2#
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Rank:none
Score:68
Posts:68
Registered:04/10/2004
Time spent: 0 hours
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(Date Posted:11/10/2006 17:51:53)
Hi, I take Oxycodone tablets in a slow release & fsat release form & injections of Diamorphine for severe breakthrough pain. the doses are irrelevant as we all need different doses & as tolerance develops these doses increase. At the moment I take 30mgs Oxycontin as a background with 5-20mgs of oxynorm or 5-10mgs Diamorphine for breakthrough pain. in the past my requirments have reached well over 500mgs per day. Of all the drugs I have tried these work best for me, especially Diamorphine, otherwise known as heroin. The impact of taking opiates on daily life is huge (see www.kidney.org & click on perceptions to see my article) but I have adapted to whatever level of medication I need to take.
many complemantary therapies have helped me so pleas email me if you would like to know more. I am a nurse too & have done a lot to publisise LPHS & nephroptosis locally.
best wishes to you from
Alison
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Alison
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Teri_R
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3#
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Rank:none
Score:6
Posts:6
Registered:21/01/2007
Time spent: 0 hours
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(Date Posted:24/01/2007 12:36:50)
Hi
I have just, on the 3rd january switched to Amitriptyline 25mg. I take one dose at night and have found I am virtually pain free for most of the next day. it also knocks me out, which I think helps me cope with what pain I do have.
I returned to work part time this week after 10 months, I have found since returning to work i have had to take co codomol in the afternoon, but the pain is bearable. Most of all being back at work has helped me to be more positive.
Hope this helps
Teri
x
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We are each of us angel with only one wing, we can only fly if we hold onto each other
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ecl
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4#
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Rank:none
Score:6
Posts:6
Registered:19/04/2007
Time spent: 0 hours
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(Date Posted:23/05/2007 13:57:29)
Reply to : Teri_R
HiI have just, on the 3rd january switched to Amitriptyline 25mg. I take one dose at night and have found I am virtually pain free for most of the next day. it also knocks me out, which I think helps me cope with what pain I do have.I returned to work part time this week after 10 months, I have found since returning to work i have had to take co codomol in the afternoon, but the pain is bearable. Most of all being back at work has helped me to be more positive.Hope this helpsTerix
Hello Teri
I have recently joined the forum and I came across your message about Amitriptyline. Having seen a consultant anaesthetist at a Pain Clinic, I am now taking this drug. He said to start at 10mg and work upwards, if side effects are tolerable. I am presently on 20mg. I too take this at night. I was told this would help the Tramadol work better ( when I need it ). I just wondered how you started on this drug. At the moment I still wake at night when I have pain, but do drop off easily which is what I needed! As for the next day, well this is still 'wait & see' as each day continues to be erratic.
Emma
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Teri_R
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5#
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Rank:none
Score:6
Posts:6
Registered:21/01/2007
Time spent: 0 hours
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(Date Posted:23/05/2007 19:03:56)
Reply to : ecl
Reply to : Teri_RHiI have just, on the 3rd january switched to Amitriptyline 25mg. I take one dose at night and have found I am virtually pain free for most of the next day. it also knocks me out, which I think helps me cope with what pain I do have.I returned to work part time this week after 10 months, I have found since returning to work i have had to take co codomol in the afternoon, but the pain is bearable. Most of all being back at work has helped me to be more positive.Hope this helpsTerixHello TeriI have recently joined the forum and I came across your message about Amitriptyline. Having seen a consultant anaesthetist at a Pain Clinic, I am now taking this drug. He said to start at 10mg and work upwards, if side effects are tolerable. I
Hi Emma,
I have increased to 50mg as I found myself having less pain free days, the side effect of drowsiness has caused me to be back off work but hopefully that will end.
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We are each of us angel with only one wing, we can only fly if we hold onto each other
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