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This Forum is for patients who suffer from Loin Pain Haematuria Syndrome, their supporters and friends. We also include those who also have IGA and IGM as they are closely connected.
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Title: Hospital visits
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Alison Banister
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Score: 68
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Registered: 04/10/2004
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(Date Posted:12/06/2007 17:54:59)

Dear All,As a seasoned hospital attendee (on average once every 5 weeks) I just wanted to ask if we could all help in educating the medical profession about LPHS & other kidney related disorders by taking some literature about it with us when we go to hospital. Most health professionals have not come across it before so rather than receiving inappropriate & poor care we can help them to provide appropriate & good care. It's also a good idea to take computer copies of medical & surgical history, drug intollerances/allergies, a list of investigations to date plus the info on LPHS facts & recommended care. It's hard remembering all of this when in agony.Dr. Hebert in the USA has circulated a recommended care plan & I wish I had had that to show the doctors a long time ago.We can be involved in setting up local care policies for people suffering from whatever condition we suffer from & presentations from patients are always welcome at Kidney conferences.Best wishes fromAlison

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Alison

Alison Banister
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Rank:none
Score:68
Posts:68
Registered:04/10/2004
Time spent: 0 hours


(Date Posted:12/06/2007 17:55:00)

Dear All,

As a seasoned hospital attendee (on average once every 5 weeks) I just wanted to ask if we could all help in educating the medical profession about LPHS & other kidney related disorders by taking some literature about it with us when we go to hospital.  Most health professionals have not come across it before so rather than receiving inappropriate & poor care we can help them to provide appropriate & good care.  It's also a good idea to take computer copies of medical & surgical history, drug intollerances/allergies, a list of investigations to date plus the info on LPHS facts & recommended care.  It's hard remembering all of this when in agony.

Dr. Hebert in the USA has circulated a recommended care plan & I wish I had had that to show the doctors a long time ago.

We can be involved in setting up local care policies for people suffering from whatever condition we suffer from & presentations from patients are always welcome at Kidney conferences.

Best wishes from

Alison

--------------------------------------------------------------
Alison

karashell
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Rank:none
Score:26
Posts:26
Registered:09/06/2005
Time spent: 0 hours

RE:Hospital visits
(Date Posted:10/04/2008 16:22:49)

Alison, Is there a chance that you might have a copy of Dr. Hebert's recommended care plan that you could email me?

Thanks,
Connie
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