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(Date Posted:03/08/2006 02:37:39)
I just wanted to get back on this site after a very long absence, to tell my story and hopefully give some reassurance and hope to all of you suffering.I was diagnosed with LPHS after all the usual tests that prove inconclusive, by Southampton Hospital in 2002. After beingreferred to the Pain Team and starting on the more and more pain killers, I began looking for answers elsewhere and that is how I discovered this web site.One name that cropped up again and again was a Mr Glass in London, so I contacted his private practice and arranged an appointment within a week. The moment my husband and I met with him he gave us hope and for once I didn't feel like a freak. It was agreed that I would be treated at Guys and over the past 3 years and as my LPHS worsened and slowely drove me to the edge of my sanity I was given support from a fantastic team made up of, the urology consultant, pain consultant, and a psychiatrist. Having all agreed that I wasn't mad but that my chronic pain was now causingsomedepression, hospital stays gettingmore frequent,morphine levels getting higher, and just thetotal effect that the LPHS was having on my life dictacted some drastic action.On the 5th of July this year I had an auto-transplant at Guy's, performed by Mr Koffman. I have never really bought in to the whole idea of miracles but from almost the moment I came round I have felt like a different person. yes the pain has gone but it is more than that, it feels as if they have removed my gremlin and given me my fight for life back.I am now 4 weeks post op, and begining to feel physically better now and just looking forward to getting on with my life LPHS sympton free. I know that there are no guarentees and there may be issues to face in the future, but for now Iam making the most of all thatis good.I would love to hear from others that have had auto-transplant, as there a few questions I have and I am sure they could help me,.THERE IS ALWAYS HOPE .......................................................................................................
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