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(Date Posted:12/08/2007 16:13:30)
I wondered if anyone could help me? I am in the middle of a diagnosis process but I have a history of kidney problems. I read the case historieson this site and would love to talk toClairas she has a similar history to me. So if you are out there Clair - and you don't mind - please get in touch.I have had a congenital disfunctional right kidney which was first realised in 1996. I have had 2 pyloplasty operations on it ( 2003 & 2004 ). This was to widen the ureter ( which was very narrow ) and then as the kidney was still obstructed & blowing up like a balloon, I had part of it removed. I had 2 years of no obstruction and no pain. Then in March 2006 I had a flair up of chronic pain. Again in August. And since last August I have had the most unbearable pain I have had and gradually has become more frequent. I never know when an onset will take place and I have 3 types of pain relief including Pethidine. In the pst 2 months I can have severe pain oneitherloin now- and can get pain in either groin. After nearly a year I have recently seen ( at last ) a nephrologist for a 2nd opinion. My Urologist has reached a 'dead end' with my diagnosis and has said removing the kidney is the path we're heading. It isn't an obstruction but the cause of pain is unknown. My nephrologist is to discuss with my urologist, and the Anaesthetist Pain specialist I saw, the next step. I await results of blood tests recently done, and have an Ultra Sound Scan coming up ( as it is 9 months since the last). There is much more to 'go into' - but if anyone has had a history of kidney operations/problems that has led to symptoms of LPHS I would beveryinterested to hear.Emma ( in Wiltshire )
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