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This Forum is for patients who suffer from Loin Pain Haematuria Syndrome, their supporters and friends. We also include those who also have IGA and IGM as they are closely connected.
Pleased be advised that the comments contained here may not be accordance with current Medical practice and we do not intend to come between the patient/web browser and their Medical Practitioners only to provide existing patients with a more informed voice and lifestyle when coping with this condition
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Title: Hi & Help....
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AuthorComment
Shaundale
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From: Great_britain
Registered: 08/04/2008
Time spent: 0 hours

(Date Posted:17/04/2008 04:18:44)

Hi,
Have been having great Left Loin pain since Dec 97 and Mum & Dad found a lot of info on LPHS and it sounds very similar to how I feel. I am currently on:
Paracetamol
Voltarol/Diclofenic
Fentanyl
Oramorph

For the pain, some days are reasnoble and other days I'm in so much pain i hate to move once I find a comfortable posistion.

The reason i post though is that I noticed before that someone said there was a specialist in Kings Lynn area and  I was wondering if anyone knew his name. Can't seem tofind the post again. Sorry for spelling and punctuation but not a good day today andthis has taken 20min to do.

Hope you can help?

Regards,
Shaun.
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