Are you sure you want to sign out?
User Name  Password
This Forum is for patients who suffer from Loin Pain Haematuria Syndrome, their supporters and friends. We also include those who also have IGA and IGM as they are closely connected.
Pleased be advised that the comments contained here may not be accordance with current Medical practice and we do not intend to come between the patient/web browser and their Medical Practitioners only to provide existing patients with a more informed voice and lifestyle when coping with this condition
Make a donation click here. Your support will help us remove ads and upload local images, etc.
Title: I had the autotransplant in May of 2000
Hop to: 
Views:498     
<<Previous ThreadNext Thread>>
Page 1 / 1    
AuthorComment
eco966
 Author    



Rank:none
Score: 7
Posts: 7
Registered: 06/06/2007
Time spent: 0 hours

(Date Posted:06/06/2007 17:50:35)

I decided after a 13 year battle with LPHS that I would try what was originally told to me to be a 6 hour surgery with minimal complications and that with an 80% chance my pain would go away. I wont go into the grotesque parts but needless to say the pain went away for about 2 months and my surgeon decided never to do them again, because and i quote "This is not a cure or a beneficial treatment for LPHS." My doctor his one of the top transplant surgeons in NY and I would follow anything he says. Good luck in your decision but I am against them.Craig

Kim Hughes
1# 



Rank:none
Score:177
Posts:177
Registered:01/06/2003
Time spent: 0 hours


(Date Posted:02/07/2007 23:56:52)

Reply to : eco966
I decided after a 13 year battle with LPHS that I would try what was originally told to me to be a 6 hour surgery with minimal complications and that with an 80% chance my pain would go away. I wont go into the grotesque parts but needless to say the pain went away for about 2 months and my surgeon decided never to do them again, because and i quote "This is not a cure or a beneficial treatment for LPHS." My doctor his one of the top transplant surgeons in NY and I would follow anything he says. Good luck in your decision but I am against them.Craig

Hi Craig,

I understand your desperation in seeking the autotransplant to stop the pain.  It's too bad that Aimoo comes through and deletes previous posts over a certain age.  I had the autotransplant in May 1990 and I';ve been very vocal in speaking against the surgery for the very reason your surgeon spoke of; it's not a cure.  It's really a drastic form of pain control.  Do you know what made your transplant surgeon come to this conclusion?

Kim
John01
2# 



Rank:none
Score:377
Posts:377
Registered:07/10/2002
Time spent: 7701 hours


(Date Posted:03/07/2007 12:20:49)

Hi Craig and Kim,
Your experience is all too common.
An Auto transplant is not the 'Holy Grail' of LPHS. It is major surgery which CAN be successful, but is also very likely to fail because of the following.

  • Despite being relocated and the nerves severed the Kidney still causes trouble
  • The other Kidney becomes affected and starts up
  • In some rare cases both Kidneys decide to cause pain
  • Other complications occur meaning that a Nephrectomy is needed and the LPHS patient becomes another patient requiring a total transplant or dialysis


All this discussion is timely as one of the papers I have found, deals with just this subject and goes into it in quite a lot of detail. Just Email me and I will send it to you asking for the Renal Denervation paper.

John

--------------------------------------------------------------
If you have had several good ideas today; keep quiet about them. Someone might steal them.

<<Previous ThreadNext Thread>>
Page 1 / 1    

Worldwide freeshipping for all the Apple iPhone and iPod accessories.
Sign Up | Create | About Us | SiteMap | Features | Forums | Show Off | Faq | Help
Copyright © 2000-2009 Aimoo Free Forum All rights reserved.